Das Gesundheitswesen , Thieme Verlag Heft 12-2023, Jahrgang 85) ISSN 1439-4421 Seite(n) 1168 bis 1172 DOI: 10.1055/a-1967-9960 CareLit-Dokument-Nr: 318600 |
|
Zusammenfassung Menschen mit Behinderung finden im Hinblick auf ihre individuellen Bedürfnisse bislang wenig Berücksichtigung in der Gesundheitsversorgung. Die Studie erhebt die Innenperspektive von Brustkrebspatientinnen mit einer vorbestehenden Behinderung in Bezug auf Bedarfe und Barrieren in der onkologischen Versorgung. Hierzu wurden qualitative, leitfadengestützte Interviews geführt und mittels qualitativer Inhaltsanalyse ausgewertet. Eingeschlossen wurden 23 Patientinnen mit körperlichen Behinderungen, chronischen körperlichen Erkrankungen, Sinnesbehinderungen, psychischen Erkrankungen und/oder geistiger Behinderung. In Abhängigkeit von der Art der Behinderung standen für Patientinnen unterschiedliche Barrieren im Vordergrund. Um die von Menschen mit Behinderung erlebten Barrieren in der Versorgung abzubauen, ist es notwendig, die Kooperation von Versorgenden aus verschiedenen Versorgungsbereichen zu fördern sowie Versorgende im Umgang mit Menschen mit Behinderung zu schulen. Abstract Up to now, people with disabilities have received little consideration in health care with regard to their individual needs. This study gathers information on the internal perspective of breast cancer patients with a pre-existing disability with regard to needs and barriers in oncological care. For this purpose, qualitative, guideline-based interviews were conducted and analysed using qualitative content analysis. Twenty-three patients with physical disabilities, chronic physical illnesses, sensory disabilities, mental illnesses and/or intellectual disabilities were included. Depending on the type of disability, patients faced different barriers. In order to reduce the barriers experienced by people with disabilities in care, it is necessary to promote cooperation between care providers from different care sectors and to train care providers in dealing with people with disabilities. Schlüsselwörter Patientenperspektive - Qualitative Forschung - Brustkrebs - Behinderung - Versorgungsforschung - Barrieren Key words patient perspective - qualitative research - breast cancer - disability - health services research - barriers 07 December 2022 © 2022. Thieme. All rights reserved. Georg Thieme Verlag Rüdigerstraße 14, 70469 Stuttgart, Germany Literatur 1 United Nations: Übereinkommen über die Rechte von Menschen mit Behinderungen (2006). Im Internet: https://www.behindertenrechtskonvention.info/uebereinkommen-ueber-die-rechte-von-menschen-mit-behinderungen-3101/; Stand: 15.12.2020 PubMed 2 Reichard A, Stolze H, Fox MH. Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. Disability and Health Journal 2011; 4: 59-67 DOI: 10.1016/j.dhjo.2010.05.003. CrossrefPubMedGoogle Scholar 3 Willis DS. What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated. British Journal of Learning Disabilities 2016; 44: 269-276 DOI: 10.1111/bld.12158. CrossrefPubMedGoogle Scholar 4 Hasseler M. Menschen mit geistigen und mehrfachen Behinderungen als vulnerable Bevölkerungsgruppe in gesundheitlicher Versorgung. Dtsch Med Wochenschr 2014; 139: 2030-2034 DOI: 10.1055/s-0034-1387334. Article in Thieme ConnectPubMedGoogle Scholar 5 Truesdale-Kennedy M, Taggart L, Mcllfatrick S. Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography. Journal of Advanced Nursing 2011; 67: 1294-1304 DOI: 10.1111/j.1365-2648.2010.05595.x. CrossrefPubMedGoogle Scholar 6 Satgé D, Sauleau EA, Jacot W. et al. Age and stage at diagnosis: a hospital series of 11 women with intellectual disabilities and breast carcinoma. BMC Cancer 2014; 14: 150 DOI: 10.1186/1471-2407-14-150. CrossrefPubMedGoogle Scholar 7 Robert Koch-Institut und die Gesellschaft der epidemiologischen Krebsregister in Deutschland e.V. (Hrsg). Krebs in Deutschland für 2013/2014. 11. Ausgabe. Berlin, 2017 PubMed 8 United Nations: Ageing and Disability. Im Internet: https://www.un.org/development/desa/disabilities/disability-and-ageing.html; Stand: 18.06.2022 PubMed 9 Groß SE, Pfaff H, Swora M. et al. Health disparities among breast cancer patients with/ without disabilities in Germany. Disability and Health Journal 2019; 13: 100873 DOI: 10.1016/j.dhjo.2019.100873. CrossrefPubMedGoogle Scholar 10 Iezzoni LI, Kilbridge K, Park ER. Physical access barriers to care for diagnosis and treatment of breast cancer among women with mobility impairments. Oncology Nursing Forum 2010; 37: 711-717 DOI: 10.1188/10.ONF.711-717. CrossrefPubMedGoogle Scholar 11 Horner-Johnson W, Dobbertin K, Lee JC. et al. Disparities in health care access and receipt of preventive services by disability type: Analysis of the medical expenditure panel survey. Health Services Research 2014; 49: 1980-1999 DOI: 10.1111/1475-6773.12195. CrossrefPubMedGoogle Scholar 12 Iezzoni LI, Ngo LH, Li D. et al. Early stage breast cancer treatments for younger medicare beneficiaries with different disabilities. Health Services Research 2008; 43: 1752-1767 DOI: 10.1111/j.1475-6773.2008.00853.x. CrossrefPubMedGoogle Scholar 13 Kuckartz U. Qualitative Inhaltsanalyse. Methoden, Praxis, Computerunterstützung. Weinhein: Beltz, Juventa; 2018 Google Scholar 14 Edwards DJ, Sakellariou D, Anstey S. Barriers to, and facilitators of, access to cancer services and experiences of cancer care for adults with a physical disability: a mixed methods systematic review. Disabil Health J 2020; 13: 100844 DOI: 10.1016/j.dhjo.2019.100844. CrossrefPubMedGoogle Scholar 15 Hasseler M. Menschen mit geistigen und mehrfachen Behinderungen in der akut-stationären Versorgung. Ausgewählte Ergebnisse einer qualitativ-explorativen Untersuchung. Dtsch Med Wochenschr 2015; 140: e217-e223 DOI: 10.1055/s-0041-106610. Article in Thieme ConnectPubMedGoogle Scholar 16 Björk Brämberg E, Torgerson J, Norman Kjellström A. et al. Access to primary and specialized somatic health care for persons with severe mental illness: a qualitative study of perceived barriers and facilitators in Swedish health care. BMC Fam Pract 2018; 19: 1-11 DOI: 10.1186/s12875-017-0687-0. CrossrefPubMedGoogle Scholar 17 Kroll T, Jones GC, Kehn M, Neri MT. Barriers and strategies affecting the utilisation of primary preventive services for people with physical disabilities: a qualitative inquiry. Health & Social Care in the Community 2006; 14: 284-293 DOI: 10.1111/j.1365-2524.2006.00613.x. CrossrefPubMedGoogle Scholar 18 Kohn L, Christiaens W, Detraux J, De Lepeleire J, De Hert M, Gillain B. et al. Barriers to somatic health care for persons with severe mental illness in Belgium: a qualitative study of patients’ and healthcare professionals’ perspectives. Front Psychiatry 2021; 12: 798530 DOI: 10.3389/fpsyt.2021.798530. CrossrefPubMedGoogle Scholar
{{detailinfo.data.api.data.document[0].apa}}
{{detailinfo.data.api.data.document[0].vancouver}}
{{detailinfo.data.api.data.document[0].harvard}}