The German PBC Registry (GPR) – Analysis of Complexity of Symptoms
Kremer, A.; Dorner, R.; Herder, B.; Kautz, A.; Schwenke, C.; Trautwein, C. · Aktuelle Ernährungsmedizin · 2019 · Heft 2 · S. 1 bis 1
Bibliografische Angaben
Zusammenfassung
Background: & Aims: Patients with PBC suffer from a complex and multifactorial symptomatology. Some symptoms are induced by PBC, others by comorbidities. Symptomatic patients have an inferior quality of life and employ self-management. Methods: A registry was established by the Leberhilfe Projekt gUG to collect symptoms and their cause. For this purpose, a questionnaire containing 89 questions was designed and validated. Affected patients completed the questionnaire online. The patients were contacted by means of a homepage and social media. The collected data were analysed descriptively and correlation analyses…
