CareLit Fachartikel
Networking for rare diseases: a necessity for Europe
Aymé, S.; Schmidtke, J. · Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz · 2007 · Heft 11 · S. 1477 bis 1483
Dokument
345094
CareLit-ID
Jahr
2007
Publikation
PDF
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Metadaten
DOI
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Bibliografische Angaben
Zusammenfassung
Most rare diseases are life-threatening and chronically debilitating conditions, and the vast majority of them are genetically determined. Their individually low prevalence requires special combined efforts to address them so as to improve diagnosis, care and prevention. Though it is difficult to develop a public health policy specific to each rare disease, it is possible to have a global rather than a piecemeal approach in the areas of scientific and biomedical research, drug research and development, industry policy, information and training, social benefits, hospitalisation and outpatient care. In the recent…
Schlagworte
seltene Krankheiten
genetische Erkrankungen
öffentliche Gesundheitspolitik
Forschung
Arzneimittelentwicklung
Patientenversorgung
Orphanet
klinische Netzwerke
Lebensqualität
EU-Initiativen
Rare Diseases
Genetic Diseases
Public Health
Drug Development
Patient Care
Health Policy
