CareLit Fachartikel
Unintended social effects of newborn genomic data use and storage in the age of sociogenomics and genetic surveillance
Bartram, I. · Ethik in der Medizin · 2025 · Heft 7 · S. 1 bis 19
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548125
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Jahr
2025
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Zusammenfassung
Genetic data are increasingly important in the field of medicine for diagnostics as well as preventative health care. With the emergence of rapid and cost-effective DNA-sequencing technology, proposals and pilot studies of genomic newborn screening programs have been put in motion in several countries, with the hope of broad medical benefits for future generations. These plans are raising significant ethical issues, as genetic data and samples contain highly sensitive information. This article will shed light on some problems associated with the kind of systematic genetic population data collection generated by…
Schlagworte
genetische Daten
Neugeborenen-Screening
ethische Probleme
Datenschutz
genetische Überwachung
soziale Auswirkungen
Genetic Testing
Newborn Screening
Ethics
Privacy
Genetic Surveillance
Social Impact
Ethik in der Medizin
