Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models. Findings from a representative survey of cancer patients in…
Köngeter, A.; Schickhardt, C.; Jungkunz, M.; Bergbold, S.; Mehlis, K.; Winkler, E. · Das Gesundheitswesen · 2022 · Heft 8/09 · S. 1 bis 1
Bibliografische Angaben
Zusammenfassung
Einleitung Secondary use of clinical data for biomedical research purposes holds great potential for various types of non-interventional, data-driven studies. Patients’ willingness to support research with their clinical data is a crucial prerequisite for research progress. The aim of the study is to learn about patients’ attitudes and expectations regarding secondary use of their clinical data in order to inform the development of an appropriate governance framework for secondary use of clinical data for research purposes. Methoden A questionnaire was developed to assess willingness of cancer patients to provid…
