Wishes and worries of haemophilia patients
Lechner, H.; Schleiermacher, A.; Berger, K.; Schopohl, D.; Schramm, W. · Zeitschrift für Orthopädie und Unfallchirurgie · 2017 · Heft 02 · S. 117 bis 126
Bibliografische Angaben
Zusammenfassung
SummaryHaemophilia care in Germany has achieved a high level and enables the majority of patients to lead a largely normal life. The Bluter Betreuung Bayern e.V. (BBB) aims to improve health care and support for haemophilia patients. A questionnaire has been developed by BBB representatives to evaluate unmet medical needs from the patient perspective. It was sent to 290 haemophilia patients and/or their parents in Bavaria in November 2015. The response rate was 51.4 %: 66 children aged < 15 years (66.7 % severe), 30 patients 15–24 years (66.7 % severe), 26 patients 25–44 years (80.8 % severe), 24 patients > 44 y…
