Von der Initiative (der Deutschen Gesellschaft für Osteologie [DGO]) zum Netzwerk: Vorstellung des deutschsprachigen Netzwerks für Seltene Osteopathien (NetsOs)
Heide Siggelkow, Uwe Kornak, Ralf Oheim, Florian Barvencik, Oliver Semler, Barbara Obermayer-Pietsch, Franz Jakob, Lothar Seefried, Christine Hofmann, Gabriele Lehmann, Gernot Jundt, Rolf Brenner, Christian Meier, Claus C. Glüer, Corinna Grasemann · Osteologie · 2020 · Heft 04 · S. 259-265
Bibliografische Angaben
Zusammenfassung
Abstract A significant proportion of rare diseases affect the musculoskeletal system. Due to growing disease awareness, increasingly individualized medicine and the availability of new innovative drugs an expanding need for expert knowledge and networking in the field of rare osteological diseases has arisen. In Europe, the European Reference Networks (ERN) were established in 2017 to address these tasks in a patient centered way. In the same year the German Society for Osteology (DGO) started an initiative to synergize and develop existing activities in the field of Rare Bone Diseases in German-speaking countri…