MDS Register der niedergelassenen Ärzte

A registry of outpatient clinics has been established in order to describe diagnostic procedures, treatment and course of disease of patients with Myelodysplastic syndromes treated in community outpatient setting (hospital and private practice). From the beginning the registry and the data collection was designed compatibly to the Düsseldorf registry which collects data from MDS patients primarily treated in academic institutions. Since July 2009 784 newly diagnosed patients from 63 institutions were included in the registry. In April 2012 755 were evaluable with a median follow up of 18.1 month. The follow up o…