Health-related quality of life in Wilson Disease
KH Weiss, N Ganion, J Pfeiffenberger, S Jessica, D Gotthardt, W Stremmel · Zeitschrift für Gastroenterologie · 2013 · Heft 01
Bibliografische Angaben
Zusammenfassung
Introduction: Health-related quality of life (HRQL) has become an important outcome measure in patients with chronic disease. It reflects how well the individual is able to cope in daily life with the burden of disease and treatment. It has been shown that HRQL is reduced in patients with chronic liver disease. Wilson disease (WD) is a rare autosomal recessively inherited copper overload disorder caused by impaired biliary excretion of copper and can progress to end-stage liver disease associated with serve neurological symptoms. Aim: The aim of this study was to measure HROL in patients with Wilson disease an t…